A few weeks back I posted about my journey with migraine. You can find it below. I’m not posting about my journey today.
I happened upon a really good migraine resource recently. It’s a blog here at WordPress created by a fellow migraineur. She posts insightful, creative content about how to battle migraine holistically.
I’m going to share with you the link to her first post. She is a really good writer. She’s concise, informative and helpful. If you suffer from migraine or know anyone who does, please check out her blog and pass the word along that there is a resource for those of us who battle this condition and it’s right under our fingertips.
Her site is called the mindful migraine, and her introductory post is here.
What do you enjoy doing most in your leisure time?
A tongue in cheek title, but it’s a serious post today, folks. I received a spam comment from a “life-of-the-party” type telling me that WordPress can easily access all of my information and surely I could make up some stories. Well, clearly this person doesn’t read my blog at all, which means I take little value from the statement. But they do have a point. Much to the spammer’s chagrin, today I won’t be making up a story or writing a poem. nor will I be performing interpretive dance.
In my leisure time I enjoy battling migraine. In my workday, I battle migraine. When I’m writing a story, I battle migraine. It’s a war, made up of many battles. Some battles migraine wins, and some I do.
I wear purple battle armor
I’ve suffered from migraine since I was 12 years old. I’m going to scream this from the rooftops: migraine is not a headache, although that is the most commonly known symptom of migraine. Many symptoms accompany migraine. And there are many types of migraine. I started out with the headache type when I was 12. And then progressed to the aura which is followed by headache as a young adult. Then I got slammed with the shadiest, dirtiest, low down piece of crap migraine I’ve ever had: vestibular migraine. Vestibular migraine is characterized by vertigo, which is the sensation of spinning. It is also characterized by a rocking boat sensation, where you don’t have balance and you walk funny. A headache, sweating, stomach upset, vomiting, tinnitus, and a host of other unusual symptoms are also seen with this type of migraine. This migraine seems to be chronic for me. I live with it every day, all day. Migraines are often genetic. They can also be traumatic brain injury induced. Migraine is a neurological condition, not a headache. There are several types of migraine, and some of them are quite shocking. They are all beasts.
Types of migraine
I consider myself a bad ass for dealing with this shit every single day of my life, continuing to work and trying to live a somewhat normal life. Having vertigo for over 24 hours and throwing up nonstop, ending with a trip to the ER, where they can’t help, is not something I would wish on any enemy that I would ever have – infinitum. Many of my family members have migraine of varying types, severity and chronic states. If you line up my family members next to each other, put on a blindfold, move to the side, wave your arms around in front of your face, you will poke every single one of my family members in the nose and yes, you will have poked a migraineur.
What causes or exacerbates it? Having a brain. Also, the barometer rising, the barometer falling, the barometer being too high, being dehydrated, not getting enough sleep, getting too much sleep, too much stress, not enough exercise, turning your head wrong, these are all things I can bring on a vestibular migraine for me which, as I explained is chronic. It’s running in the background in my code. It comes to the forefront when it wants.
I have medication, but they don’t work quite as well as they should, and it’s always about tweaking the medications for us chronic migraineurs. You cannot cure migraine. Migraine is a neurological condition. It is controllable. For me, medication is essential. CBT and other types of behavioral therapies help. Vestibular rehabilitation exercises help. Getting up out of bed when you feel like you’re going throw up yet again and you can’t stop spinning helps. But imagine having to do that every day.
This is key to understanding
I don’t expect to ever be cured of this, and I don’t expect anyone to understand how you can be completely disabled at times by something you can’t see. But people who have an invisible condition or disability will understand what I’m talking about. What I do in my leisure time is I fight migraine. It is a war. I will fight to the death.
In my other free time I poke fun at Blahganuary, because I can create. I write stories and poems because I am a creative. There’s a section of my brain that isn’t filled with misfiring neurotransmitters and conductivity overstimulation or hypersensitivity. The calm area is where I get into the writing zone and chill.. I just also happen to have a chronic neurological condition that at times is disabling. I never let it win, and I never will.
While I was writing this piece using dictation, WordPress heard me say vestibular wrong. It typed out “Mr. Buler.“
(“Buehler? Beuhler? Buehler?” anyone?)
So to WordPress, thank you. I now have a nickname for my condition. When it acts up, as it is known to do, I will tell Mr. Buler he can kick rocks. I may even say it out loud in public, just for fun. “Mr. Buler, could you not have stayed home today? I mean, you didn’t even bring your battle gear. I have mine. And I’m going to use it.”
“It's Amy,” I said. 